Author Archives: Annie

2nd Birdshot Day, 2012 on You Tube

Posted on May 2, 2012 by Annie

We have now posted  all of the talks from the 2nd Birdshot Day held on 3 March 2012.  To access these, please go to You Tube and type in Birdshot Uveitis Society to find our channel.
Alternatively, click on the links … Continue reading →

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Food Poisoning and autoimmune diseases

Posted on March 28, 2012 by Annie

Many research studies have looked at the link between food poisoning and the onset of diseases, either shortly after the food poisoning, or later in life.
Last week, the Daily Mail published a short article by Fiona MacRae, the Science Correspondent, … Continue reading →

Posted in News, Research | 7 Comments

Humberside Local Birdshotter Group and Fundraising

Posted on March 28, 2012 by Annie

Sue Bridge, a BUS member and a Birdshotter, is setting up a local group for people with Birdshot in the Humberside/Lincolnshire area. She had already set a date for the first meeting, but this had to be cancelled due to … Continue reading →

Posted in Fundraising | 1 Comment

Birdshot Day 2012 Feedback

Posted on March 26, 2012 by Annie

Above the team of helpers: member of BUS and family and friends, medical students, staff from Moorfields Eye Hospital and the NIHR BRC for Ophthalmology.  Thank you all of you.  We wouldn’t have been successful without all your help.
Below views … Continue reading →

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Birdshot shock

Posted on March 22, 2012 by Annie

We wanted to share this very moving poem as we are sure it will resonate with most members who will know exactly the experience Margaret is talking about. Margaret was the opening BUS speaker at the 2012 Birdshot Day.   … Continue reading →

Posted in Birdshot Day | 3 Comments

Blind people to lose millions

Posted on March 21, 2012 by Annie

The Government’s plans to replace Disability Living Allowance (DLA) with Personal Independence Payment (PIP) will remove tens of millions of pounds from blind and partially sighted people.
The criteria for the new benefit fail to recognise that sight loss is a … Continue reading →

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‘Clusters’ of Birdshotters? Your help please

Posted on March 14, 2012 by Annie

With more Birdshotters registering on BUS, we are beginning to develop a better picture of Birdshot.  One of the interesting questions that keeps arising is whether certain geographical areas have more people with Birdshot.
At our Birdshot Day on 3 March, … Continue reading →

Posted in Research | 4 Comments

The Three Tenners

Posted on March 6, 2012 by Annie

For those of you who came to the Birdshot Day on Saturday, 3 March, you will have heard Mike Brace with his inspirational opening speech to the Day.
Mike is the BUS professional Advisor. He has long experience in running charities, … Continue reading →

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Sirolimus eye injections given orphan drug status

Posted on March 6, 2012 by Annie

Sirolimus has been given orphan drug status, which suggests that the studies carried out at various institutions have shown positive results. It is still being trialled as  part of a phase 3 study (see attached link.)
This drug given as an invitreal … Continue reading →

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Birdshot Quality of Life Study

Posted on March 4, 2012 by Annie

Please help your fellow members by clicking  on this link to help Birdshot Uveitis Society  research into how the eye condition and the medication we often have to take affects our quality of life .
The first three pages  of the survey … Continue reading →

Posted in Birdshot Day, Patient info, Research | 1 Comment