Birdshot and the Carrots Night walk

Sight loss and vision charities come together to fundraise at the Carrots NightWalk and support new eye research.

Teams from 9 charities (RP Fighting Blindness, International Glaucoma Association, Nystagmus Network, Childhood Eye Cancer Trust, PMRGCAUK (Polymyalgia Rheumatica and Giant Cell Arteritis UK) , Birdshot Uveitis Society, Uveitis Information Group, British Thyroid Foundation and the Thyroid Eye Disease Charitable Trust) will be joining forces with Fight for Sight for this year’s expanded Carrots NightWalk on Friday 20 Sept 2013. The charities will not only be entering teams in the flagship event but will also be partnering to fund new research grants.

These unique partnerships will raise vital funds to help people living with sight loss.

The new awards will fund research into RP, glaucoma, retinoblastoma, uveitis, nystagmus, PMRGCA, and thyroid eye disease. Fight for Sight, with the support of each partner organisation, will jointly fund new Small Grant Awards, worth up to £15,000 each. Applications for these research awards will be open during the summer.

Michele Acton, Chief Executive, said: “It is so important for us to be able to see upfront the huge benefits of the Carrots NightWalk. Everyone enjoys coming together for the event but more importantly it raises much needed funds. Whether participants choose to support Fight for Sight or the important work of other sight loss charities, the money raised will go into vital research.

“By partnering to expand our research programme, we hope that we can move more quickly towards our goal of making sight loss a thing of the past.”

For more information about the Fight for Sight Carrots NightWalk, please visit http://www.fightforsight.org.uk/carrots-charity-nightwalk-london or call 0207 264 3900.

Magnificient Shoot Result – £55,882 !

champagne reception after shoot.jpgStimulated by the sparkling form of guest auctioneer, Jeffery Archer and the generosity of those who attended, the fabulous sum of £55,882 was raised on the inaugural Birdshot Uveitis charity clay pigeon shoot.

Sponsored by the John F Hunt Group and Silverdell plc, the day was skilfully staged by Dylan Williams and the team at the Royal Berkshire Shooting School. Twenty three squads of four guns ranging from experienced shots to absolute beginners, mastered the progression of the speeding clays.

Finally assembled, having travelled from far and wide via helicopters and more new Range Rovers than one could shake a stick at, everyone gathered for a hearty breakfast of Berkshire bacon and game sausages. Following a typically witty briefing the teams suited up before moving up the grassy valley in bright sunshine.

It quickly became apparent that there were many different skill sets on display, however the general mood was one of cautious optimism. A mid-morning break saw many delicious snacks from parmesan risotto balls to onion bahjis and Mars bars consumed by the ravening hordes, who then continued their second session of shooting heading towards the home run.

A delightful menu from the Pot Kiln restaurant, Mike Robinson’s 2-rosette gastro-pub in Yattendon, included everything from his home smoked salmon to artisan Snowdonia cheese and suitably fired with great food and enthusiasm in equal measure, the audience sat back for the speeches and auction.

130501_FS_84751acc7ed821d0.jpgAfter heartfelt speeches regarding the debilitating Birdshot Uveitis disease from John Hall, a director of Birdshot and a sufferer of this rare eye condition; and Professor Will Ayliffe, an authority on Birdshot and a leading Eye Consultant, the business of the auction began.

130501_FS_85351acc7ef89628.jpgThose who know Jeffery Archer only for his work as parliamentarian and author saw new talents revealed as he cajoled, coerced and called bids from across the room, with occasional fines from souls whose only sin was not to have turned off their mobile.

The auction prizes included a day’s trout fishing on the Test in Hampshire, deer stalking in Kent, ratting in Yorkshire, pheasants shooting in Hertfordshire and Japanese dining in London. Together with a holiday in Portugal, a visit to the Mercedes F1 factory, a painting by Geoffrey Key, tickets for West Ham, tickets for Twickenham and a painting by Lesley Fotherby of the Royal Ballet. In the silent auction a limited edition book on Holland and Holland and two cases of vintage champagne quietly raised funds and the final flourish came with the auctioning of twenty or so mini excavator models.

The prize distribution began. Alan Walker took the magnum of Taittinger for an inspired guess at the number of shots discharged, with an error of just 126 on 5,794.

Jonathan Bennett’s Marubeni-Komatsu Commanders took the clay conservation award, Bruce Diffey’s JF Demolition Derby team took whisky tumblers for the Glorious 12th award, Janet Hall the top Lady Gun and Tracey Riddington the High Gun prize.

Luke Riddington’s HRH Partnership Pistols, with Patrick Boxell and the Boltons, David Snr. & Jnr. were recipients of hipflasks and subscriptions to Shooting Gazette as top team.

It is fair to say that all present enjoyed themselves comprehensively and plans are afoot for a re-run on the 21st May 2014

 


 

Cast your vote please !

Where should the next UK Birdshot Day be held?

We’d like to canvass your opinion on where the next Birdshot Day should be held?  The date we are aiming for is March 2015.

To keep it simple we have 3 suggestions to choose from with the opportunity for you to make your own suggestion if preferred.

It’s a bit of an experiment as we have never used this software before, but do please do cast your votes and let us know which of the following locations you would prefer.

Many thanks

The Birdshot Team

Helping educating future optometrists about Birdshot

Students learning about Birdshot Chorioretinopathy

Students learning about Birdshot Chorioretinopathy

BUS helped at the Fight for Sight Optometry Examinations by sending along Birdshotters to be examined by future optometrist.  Many of the students had never heard of Birdshot Uveitis, so it was a great opportunity to get them better acquainted with the eye condition.

Birdshot is difficult to diagnose even for experienced ophthalmologist because the tell tale lesions do not necessarily appear straight away.   But it is useful for optometrists to know a bit more about it, that floaters,  flashings and inability to see in the dark, a failed field test for example,might be a sign of something more serious going on in the eye that needs to be referred to a specialist for further tests.

Top 10 Priorities for Ocular Inflammatory Diseases

The Sight Loss and Vision Priority Setting Partnership Survey in 2012 asked patients, carers and eye health professionals to identify unanswered questions about the prevention, diagnosis and treatment of sight loss and eye conditions that they wished to see answered. A number of Birdshot Uveitis Society members took part in this survey and raised many interesting questions.  Continue reading

Research News – May 2013

A recent paper (1) confirmed the previous finding  (2) of the involvement of the T helper 17 (th17) cells in birdshot. Th17 cells are associated with autoimmune diseases and are also involved in diseases such as ankylosing spondylitis and behcet disease (also associated with uveitis).

(1)Yang P, Foster CS. Interleukin 21, Interleukin 23, and Transforming Growth
Factor β1 in HLA-A29-Associated Birdshot Retinochoroidopathy. Am J Ophthalmol.
2013 Apr 23. doi:pii: S0002-9394(13)00168-2. 10.1016/j.ajo.2013.03.004.

(2)Kuiper JJ, Mutis T, de Jager W, de Groot-Mijnes JD, Rothova A. Intraocular
interleukin-17 and proinflammatory cytokines in HLA-A29-associated birdshot
chorioretinopathy. Am J Ophthalmol. 2011 Aug;152(2):177-182.e1. doi:
10.1016/j.ajo.2011.01.031.

The research  suggest the importance of systemic therapy and offer new insights into the potential of targeted treatments for Birdshot Uveitis.

 

Are you in your 20s suffering from Birdshot?

BUS has a facebook friend who is a young sufferer of Birdshot Uveitis who would like to be in touch with others in a similar age bracket. If you would like to be in touch by email or via facebook please do let us know and we will help you connect.  

Annie
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RNIB Technology Support Services

Recently a volunteer from RNIB wrote to BUS telling us about a services that they provide for blind and partially-sighted people.  It is called their Technology Support Service and they are asking us to promote it to our members.

The Technology Support Service aims to help blind and partially-sighted people to remain or become independent.  So if your vision has been badly affected by your Birdshot at the moment, or you know someone else who could use this help, you might like to get in touch with RNIB to find out more.  Note you do not have to be registered as partially sighted, but you do need to be based in the UK!

RNIB specialist volunteers – known collectively as the Technology Support Squad – are available to help with all kinds of technology-related tasks such as installing DVD players, connecting PC’s/Laptops, helping individuals access audio libraries, using  DAISY talking book player and many other technical type problems which you might find difficult on your own.

They also have a network of volunteers who are available to help people by visiting them in their homes.

If you think you know of someone who could benefit from the use of this service, please ask them to get in touch with the Technology Support Squad on; 0303 123 9999, email; helpline@rnib.org.uk or find us online; rnib.org.uk/techsupport.

If you do decide to try it out, please do let us know how you get on.  It is always interesting to get feedback about services like this.

Annie

 

Calling Birdshotters in South Africa

We have a member based in Capetown who  would like to be in touch with others in South Africa who have Birdshot so that you can share your local knowledge and  experience of treatment etc.

If you would like to be put in touch with this Birdshotter, please email us let us  and we will be pleased to put you in touch.

Thank you

Annie for the Birdshot Team