Birdshot Uveitis Society
Welcome to the website for the Birdshot Uveitis Society (BUS), a support group for people with the rare, hard-to treat, autoimmune, posterior uveitis called Birdshot Chorioretinopathy. We are part of UIG, (the Uveitis Information Group), a registered charity, No SC028439.
For an overview on Birdshot Chorioretiniopathy, click on the navigation button above ‘Birdshot Info’ or go to: http://birdshot.org.uk/blog/index.php/birdshot-overview. More general information about all types of uveitis can be found on the UIG website which can be accessed on www.uveitis.net.
We very much hope that you will find this website informative and easy to navigate. Please let us know if you have any problems, or you have any ideas on how to make the website more useful – email us at birdshot@live.co.uk.
You can navigate to the different areas of the website using the navigation menu at the top or on the right.
Just before Christmas we published a leaflet about BUS which we will shortly be sending to UK consultants who we know have birdshot patients. If you are a birdshot patient, we hope that they will give you a copy. If you want to make sure your consultant is involved, please email us at birdshot@live.co.uk so that we can add their name to our list. We need your help!
You can also print off a copy of the BUS leaflet here. The leaflet tells you of our very exciting plans for a forthcoming Birdshot day in 2010 and also contains a form that you can fill in so that you can be added to our database of people with birdshot.
To print off any of our fact sheets, please go to the the ‘Fact Sheet‘ section where there are PDF files that you can download.
Contacting us for support
If you have Birdshot we want to hear from you so that we can support you and offer information and help if you need it. Please contact us by sending us a short email to birdshot@live.co.uk.
Membership is free and will entitle you to access the Members library – a private area of the website where various resources are listed. Please do join to gain access to this useful area if you want to get detailed information about various drug treatments and information about current and recent research. We plan to develop this area of the site more in the future and welcome suggestions.
A range of healthcare professionals have also joined as members and we really welcome this development. If you are a healthcare professional who wants to know more about Birdshot, or who already is an expert in Birdshot and can help us develop the site, or you want to link with other healthcare professionals or patients, we want to encourage you to become members. We can then develop a ‘Birdshot Community’ in the UK and internationally.
Birdshot Register
We are also keen to build up a database of everyone who has Birdshot in the UK so that we can raise the profile of it, ensure appropriate funding is offered for those with Birdshot and understand the incidence and prevalence so that useful research for new treatments or prevention can be found. Please complete the form found at this link. At this stage we simply need your name, email address and a short message, telling us a bit about your Birdshot and who you are treated by. We will then be in touch with you by email and add you to our register. All information will be treated confidentially. Thank you for joining the register.
