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The Importance of Patients in Research of Rare Diseases
It seems very apt, when we have just finalised the date for our first Birdshot Patient Day for Saturday 11th September 2010, to come across some research by EURORDIS (the EURopean Organisation for Rare DISeases). EURORDIS is the voice of ‘patients with rare diseases across Europe’.
The survey has found that rare disease patient organisations (such as BUS, the Birdshot Chorioretinopathy Uveitis Society) play important roles as catalysts for research on their respective diseases. They can also be valuable partners in identifying the gaps and supporting early research in areas not covered by the public or private sectors.
Seeing better with Bates
The Bates method (Do You Want Better Eyesight Without Glasses?)
Born in 1860, Dr Bates was a New York ophthalmologist who devised an alternative way of helping people to improve their eyesight naturally using various relaxation and stimulation techniques. The full article about bates can be found in the self-help section of the site:- http://birdshot.org.uk/blog/index.php/self-help/seeing-better-with-bates
This is not a cure for birdshot but it might help improve your vision.