Archive for July, 2010
Book your place at the Birdshot Day
Below is the detailed programme for the Birdshot day. We are very excited that so many excellent expert speakers have agreed to participate at our first Birdshot Day. This day has been organised by BUS, Narciss Okhravi and key people from Moorfields. The fact that we have been able to organise such a day is testament to the hard work and commitment of these people.
It is a great honour to be able to welcome Professor Phuc LeHoang and his colleague Dr Christine Fardeau to talk about the latest birdshot research programme that they are carrying out in France. We will also get the chance to hear about future developments and will be introducing the Pan European Birdshot Research Network to you all. We are most fortunate to have the help and support of Professor Miles Stanford of Guys and St Thomas’s NHS Trust, Mr Carlos Pavesio, Miss Narciss Okhravi and Mr Mark Westcott from Moorfields Eye Hospital, Professor Andrew Dick of Bristol Eye Infirmary and Professor Phil Murray of Birmingham University.
Book your places now. The conference, including lunch, is free, as we have managed to obtain sponsorship but we do require a £20 refundable registration deposit. This can paid on line here (debit and credit card & PayPal). Please note that the payment will show that it is being made to the Uveitis Information Group.
You can also pay by cheque and information about how to do this is here.
If you are unemployed we will waive the deposit as we do not want people to be prevented from coming due to financial constraint.
The Eye Bag
In case you haven’t heard of it we’d like to tell you about “The EyeBag” , the re-useable warm eye & eyelid compress designed by Yorkshire Consultant Ophthalmologist and Uveitis Specialist, Mr Teifi James.
Health professionals frequently advise daily warm compresses for lots of common eye problems – Dry Eye, Blepharitis, Styes and Cysts. Hot wet flannels are ineffective and compliance is poor. The EyeBag is designed to treat these conditions. The EyeBag is a simple re-usable black and silver silk hot-compress. It is designed to be heated in a microwave for 20-30 seconds just before use and can be re-heated around 200 times. It is usually used twice a day for the first fortnight and several times a week thereafter. Stunning symptomatic improvement means happier patients with less frequent hospital visits.
You can find an EyeBag stockist near you or order online at http://www.eyebagcompany.com/
This is such a simple and effective bit of kit for many people with eye problems that come with uveitis. Blepharitis and dry eye, for example, are possible complications for people with birdshot due to a compromised immune systems.
We’re delighted to tell you about this particular product because it is effective and easy to use. The Eye Bag company has generously sponsored Uveitis Information Group’s work, which includes Birdshot Uveitis Society.
Thank you so much.
Annie and Rea
Info Sound Despatch
We have recently received news from Vision 2020 (UK) about a free monthly audio information service from the UK registered charity Infosound, in association with British Wirelessfor the Blind Fund. We understand that they produce this free, monthly audio compilation of information that could be of particular interest to blind and partially-sighted people. Called the Infosound Despatch and usually lasting for about an hour, the monthly selection of audio articles aims to cover a wide variety of different topics about living with sight loss, useful products, leisure, holidays, mobility, housing, employment, money, consumer issues and support services. It’s totally free and delivered on standard audio CD to listeners’ homes every month and it does not have to be returned. The charity’s other services are only available on their web site www.infosound.org.uk, so the new monthly “Despatch” is specifically for vision-impaired people who do not have access to the Internet.
Anyone interested is asked to phone 084 55 55 55 28 and leave their name, address and telephone number or to email audio@infosound.org.uk.
Birdshot in Scandinavia
We need your help please!
We have a Swedish person with birdshot who would like to be in touch with others either from Scandianvia or Sweden who have Birdshot Chorioretinopathy so she can chat to someone in her own language about what she is experiencing.
Please get in touch with us if you think you might be able to help. Email birdshot@live.co.uk
Annie and Rea
A sponsor of the Birdshot Day
