Aims
The Birdshot Uveitis Society is part of the Uveitis Information Group, a charity supported by a consortium of doctors, ophthalmologists and health professionals.
The aim of the Birdshot Uveitis Society is to:
- support patients with Birdshot, particularly when first diagnosed
- provide up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible
- hold a database of consultants and rheumatologists who have expertise and interest in Birdshot and its treatment, so that patients can make informed choices about where to go for treatment
- build better services for people with Birdshot, including speedier diagnosis, a pathway into specialist treatment and treatment protocols that are standardized across the UK
- raise the profile of Birdshot to ensure it receives a fair share of health and social care resources
- help prevent avoidable loss of sight or vision through untreated or inappropriately treated Birdshot
- build a community of Birdshot people around the UK
- establish the incidence and prevalence of Birdshot. At the moment, Birdshot is classed as a ‘rare’ or ‘orphan’ disease. Because of this, it is not readily understood or recognized and some people have difficulty in finding appropriate healthcare to prevent the loss of sight.
- promote international links to research in other countries.
- promote an international consortium of research into the condition to both better understand and treat Birdshot and to use the learning to help treat or prevent other autoimmune diseases.
- fundraise in order to achieve our aims.