Category Archives: Our stories
Lorraine’s Birdshot Story
Lorraine is the BUS fund-raiser and was diagnosed with Birdshot in September 2011. She was asked to tell her story to her local gym/club and they have published it on their web-site. Wonderful – not only does it help us … Continue reading →
Trial drug AIN 457 – a patients view
A Patients view of the recent study into the treatment of posterior Uveitis with a trial drug – AIN457
In 2007 I was sent to Shrewsbury hospital by my optician after a routine examination for contact lenses. After several months of … Continue reading →
BUS moves to the next level
We are very excited to announce that BUS is growing and developing.
Until August 2011, BUS was part of the Uveitis Information Group (UIG), a charity working for people with all forms of uveitis. However, this arrangement became difficult to maintain … Continue reading →
Neil’s story
An Australian Birdshot colleague of ours called Neil, recently wrote to us to tell us about his experimental approach to supplements. He has been trying to find a way of improving his vision through supplements and told us why … Continue reading →
Mike Brace & Phil Hibbert on vision loss
The inspirational Mike Brace CBE, Chief Executive of VISION 2020 (UK) talks about losing sight in one of his eyes from a firework accident when he was 12, the subsequent development of uveitis in his remaining eye, and how he … Continue reading →
AIN 457 Study – my personal experience
Could this be the answer?
From a personal perspective, Nick tells his story about his experience on the Phase 3 Novartis AIN457 Study
“I’m really happy to bring some good news. I’ve been taking part in the Study of a … Continue reading →
More audio Birdshot stories
Here are some more Birdshot stories taken from the Birdshot Day in September.
Real Ale It took a long time before Real Ale was diagnosed. He describes the side effects that many of us suffer from when on high doses of … Continue reading →
People with Birdshot talk….
It’s a frustrating fact that diagnosis for Birdshot is not easy, even for the experts. That’s why it takes so many of us a long time before we eventually get told what is wrong with our eyes, and even then, … Continue reading →
Hospitals failure to communicate with GP
Has anyone had the same problems as Real Ale?
Recently his consultant changed his immunosuppressant from Azathioprine to Cellcept (mycophenolate moefetil). He collected his prescription from the hospital pharmacy. This was fine until he nearly ran out and asked his GP … Continue reading →
Brandy’s story
This is my experience with finding work and keeping it after vision loss; hopefully it will ease your mind at little.
Brandy is in the US so the links wont apply to the UK but the information is still relevant. If … Continue reading →
