Comments for Birdshot Uveitis Society http://birdshot.org.uk A support group for people with the rare, hard-to treat, autoimmune, posterior uveitis called Birdshot Chorioretinopathy Wed, 22 Feb 2012 21:20:55 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Stem cell therapy may well restore sight by Annie http://birdshot.org.uk/4923#comment-570 Annie Wed, 22 Feb 2012 21:20:55 +0000 http://birdshot.org.uk/blog/?p=4923#comment-570 It is very early days for stem cell therapy and we are still waiting and hoping and praying that it will be the magic bullet, but it is probably too early to be sure. It has been established that it is safe, and some sight seems to being restored but there have been very few case so far where it has been used. Google the London Project and Professor Pete Coffrey and watch out for news on this. Also Macular Disease Society may keep up-to date - they provided funding for the project. Hopefully there should be some positive news soon, but it is quite a few years away before it is going to be offered as a treatment, I would think. If your boyfriend's uveitis is troubling him, he should make sure he is being seen by someone who specialises in uveitis. It is possible that the treatment for his Crohns and spondylitis might also help his uveitis. It is very early days for stem cell therapy and we are still waiting and hoping and praying that it will be the magic bullet, but it is probably too early to be sure. It has been established that it is safe, and some sight seems to being restored but there have been very few case so far where it has been used. Google the London Project and Professor Pete Coffrey and watch out for news on this. Also Macular Disease Society may keep up-to date – they provided funding for the project. Hopefully there should be some positive news soon, but it is quite a few years away before it is going to be offered as a treatment, I would think. If your boyfriend’s uveitis is troubling him, he should make sure he is being seen by someone who specialises in uveitis. It is possible that the treatment for his Crohns and spondylitis might also help his uveitis.

]]> Comment on Stem cell therapy may well restore sight by Alison Keenan http://birdshot.org.uk/4923#comment-569 Alison Keenan Wed, 22 Feb 2012 19:56:56 +0000 http://birdshot.org.uk/blog/?p=4923#comment-569 Hi my boyfriend had had uveitis for over a year in his left eye, it was caused by crohns disease and spondylitis. Can you advise me if he will be able to have the stem therapy and how would he get it? Thanks Hi my boyfriend had had uveitis for over a year in his left eye, it was caused by crohns disease and spondylitis. Can you advise me if he will be able to have the stem therapy and how would he get it? Thanks

]]> Comment on Update about rare diseases from Orphanet by German Pharmaceutical Market | Pharmaceutical News http://birdshot.org.uk/8557#comment-560 German Pharmaceutical Market | Pharmaceutical News Mon, 20 Feb 2012 14:07:02 +0000 http://birdshot.org.uk/?p=8557#comment-560 [...] Market Greece What is the biologic environment like in Germany? ... The German biologic market is expanding; bioph...utical market in Germany by 2020. It is estimated that there are around 400 biotechnology companies [...] [...] Market Greece What is the biologic environment like in Germany? … The German biologic market is expanding; bioph…utical market in Germany by 2020. It is estimated that there are around 400 biotechnology companies [...]

]]> Comment on Join BUS and Fight for Sight on the “Carrot Walk” and raise funds for Birdshot Research by Carmel Timmins http://birdshot.org.uk/8726#comment-546 Carmel Timmins Mon, 06 Feb 2012 15:15:07 +0000 http://birdshot.org.uk/?p=8726#comment-546 Hi Annie and Rae I would like to participate in this Walk to raise funds for Birdshot Research. One of my sons may join me but needs to ask the wife???? Carmel Hi Annie and Rae

I would like to participate in this Walk to raise funds for Birdshot Research.
One of my sons may join me but needs to ask the wife????

Carmel

]]> Comment on Birdshot Day Registration – Important News by Annie http://birdshot.org.uk/8811#comment-545 Annie Sun, 05 Feb 2012 17:03:27 +0000 http://birdshot.org.uk/?p=8811#comment-545 Hi Karen, I can confirm that we have got it. I did send an email to you, and have just written again. I hope you got our response this time! Hi Karen, I can confirm that we have got it. I did send an email to you, and have just written again. I hope you got our response this time!

]]> Comment on Birdshot Day Registration – Important News by Karen W http://birdshot.org.uk/8811#comment-544 Karen W Sun, 05 Feb 2012 16:26:44 +0000 http://birdshot.org.uk/?p=8811#comment-544 Please could you confirm if you have received my booking form in the post. Many thanks Please could you confirm if you have received my booking form in the post.
Many thanks

]]> Comment on Important Note re Grange St Paul’s Hotel Concession by Birdshot Day Registration – Important News | Birdshot Uveitis Society http://birdshot.org.uk/8598#comment-540 Birdshot Day Registration – Important News | Birdshot Uveitis Society Thu, 02 Feb 2012 10:22:23 +0000 http://birdshot.org.uk/?p=8598#comment-540 [...] Also if you want to take advantage of  the special accommodation rate at the hotel, this needs to be booked by the 5th February.  Please see here  for  how to book. [...] [...] Also if you want to take advantage of  the special accommodation rate at the hotel, this needs to be booked by the 5th February.  Please see here  for  how to book. [...]

]]> Comment on Next Birdshot Day – book your places now! by Birdshot Day Registration – Important News | Birdshot Uveitis Society http://birdshot.org.uk/8406#comment-539 Birdshot Day Registration – Important News | Birdshot Uveitis Society Thu, 02 Feb 2012 10:21:13 +0000 http://birdshot.org.uk/?p=8406#comment-539 [...] Please take note that we need to know by the 20th February if you are going to be coming to the Birdshot Day on Saturday 3rd March as that is when we have to confirm our numbers with the Grange St Pauls Hotel, our venue for the Birdshot Day.  Details about how to register can be found here. [...] [...] Please take note that we need to know by the 20th February if you are going to be coming to the Birdshot Day on Saturday 3rd March as that is when we have to confirm our numbers with the Grange St Pauls Hotel, our venue for the Birdshot Day.  Details about how to register can be found here. [...]

]]> Comment on Join BUS and Fight for Sight on the “Carrot Walk” and raise funds for Birdshot Research by London/SE Birdshot Friends First Meeting | Birdshot Uveitis Society http://birdshot.org.uk/8726#comment-533 London/SE Birdshot Friends First Meeting | Birdshot Uveitis Society Sat, 28 Jan 2012 10:02:33 +0000 http://birdshot.org.uk/?p=8726#comment-533 [...] JOIN BUS Skip to content ← Join BUS and Fight for Sight on the “Carrot Walk” and raise funds for Birdshot Re... [...] [...] JOIN BUS Skip to content ← Join BUS and Fight for Sight on the “Carrot Walk” and raise funds for Birdshot Re… [...]

]]> Comment on London/SE Meeting 21st January – more details! by Claudia wilson-Barrett http://birdshot.org.uk/8622#comment-530 Claudia wilson-Barrett Thu, 19 Jan 2012 15:31:58 +0000 http://birdshot.org.uk/?p=8622#comment-530 As a healthcare provider, it is very encouraging to see the involvement and enthusiasm from you all. Make sure for those who attend Moorfields, to find me when you are next in clinic. As a healthcare provider, it is very encouraging to see the involvement and enthusiasm from you all. Make sure for those who attend Moorfields, to find me when you are next in clinic.

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