Birdshot survival guide

When you are first diagnosed with any medical condition, it comes as a shock, it is worrying, and it provokes the inevitable anxiety caused by anything that rocks your life.  When the medical condition is a rare one like birdshot, which is sometimes hard to diagnose and can be even harder to treat, then you need all the help you can get.

This guide has been compiled by a birdshot patient using input from many fellow birdshotters (as we call ourselves) and reviewed by medical professionals.

The purpose of the guide is to share handy tips that other patients have discovered on their birdshot journey. The hope is that this booklet will help others to survive the many challenges of being a birdshotter.

To view the Birdshot survival guide in a larger format, hover your mouse at the bottom right hand-side of ‘player’ and then click on the little square shape (right-hand-side of the tool bar at the bottom of the booklet.) To progress from page to page, click on the arrow on the right to navigate to the next page.

If you want to download a pdf copy of the guide, you can download it here.

Give us your feedback

Please tell us what you think of our survival guide so we can keep improving it, and click the link to fill in our feedback form.  Also please do let us know of your own handy tips to help with coping.

2 thoughts on “Birdshot survival guide

  1. Good afternoon.
    I am just waiting to go to the Hospital for a check up and next Wednesday I go to Moorfields to get a confirmation of Birdshot .
    My vision is bad and goes from good to bad during the day, I am not driving as I can not see the side of the road during the day or the evening.
    I am now 77 and I think I have had birdshot most of my life.
    I must go now

    • Sorry to hear about your recent diagnosis. I am really sorry for my late reply. Do email me on if you have any questions that you want to ask. It is a big shame that it has taken so long for you to be diagnosed, as it will be hard to recover the vision you have lost, but let’s hope they can put the breaks on now, so that you retain what you have left.

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