Outside useful links

Support Forums

  • Olivia’s Vision – A UK uveitis charity set up in 2011 providing support and information for people with all types of uveitis (includes a discussion forum.) Olivia’s Vision is also raising funds to support training of Uveitis Fellows in England.
  • PIC Society and Forum – Punctate Inner Choroidopathy Society helps people diagnosed with PIC, another form of uveitis.
  • Rareshare Forum for Birdshot – Based in the US, this website attempts to bring together all the rare diseases.  There is a useful summary of Birdshot on this site, although it is not a very active forum yet.

Uveitis Links

ARVO – Association of Research in Vision and Ophthalmology based in the USA

  • Inflam’oeil – This is a french information support group for people with uveitis.   They have regular meetings for patients which are held in Paris.
  • International Uveitis Study Group – The IUSG comprises researchers and clinicians who are commited to stimulate, encourage, and intensify a concerted effort in research and clinical management of uveitis, with the goal of developing new methods for the diagnosis, treatment, and prevention of blindness
  • The Ocular Immunology and Uveitis Foundation – Dr Foster started the Ocular Immunology and Uveitis Foundation, for the purpose of research and education in ocular immunology and ocular inflammatory diseases.   It is full of information about uveitis, support groups and medical research paper.

Vision Links

  • Amsler Grid – An amsler grid is useful for testing your central vision.
  • Ask Doctor Foster – Stephen Foster is a doctor based in Boston who answers questions on-line. Because of where it is based it has a US slant. Dr Foster responds quickly and is prepared to collaborate with your specialist if necessary.
  • Fight for Sight  –  a specialist eye research charity who’s mission is to stop sight loss in its tracks.  BUS works in partnership with Fight for Sight raising funds for jointly funded research work into birdshot uveitis.
  • Guide Dogs for the Blind – You don’t need to have lost your sight, or to be registered as blind or partially-sighted for Guide Dogs to help you. You just need to have sight loss that makes it difficult to get around independently or live life to the fullest.
  • RNIB – Royal National Institute of Blind People is a leading UK charity offering information, support and advice people who have a vision problem.  They have a useful directory that can be found at:- http://www.sightlinedirectory.org.uk/
  •  VISION 2020 is an umbrella organisation which facilitates greater collaboration and co-operation between organisations within the UK, which focus on vision impairment and operate on a national, regional or international basis. You can sign up to receive the VISION 2020 Newsletter by registering on their website and ticking the box to say you would like to receive a newsletter.