Feedback from patients:

“You are two amazing people! My husband and I want to thank you (from me a special thank you) for putting on such a comprehensive and incredibly well managed Birdshot Day. We could not have come this far with out the two of you, with your sheer determination and hard work.  We all have light days and dark days, days we are not sure about, but there is ‘light at the end of the tunnel’ where you have both been involved. A big THANK YOU”

“Thank you so much for a fab day! It was really informative and fantastically well organised, we really enjoyed it and appreciate the time and effort you put in to deliver it.”

“Thank you so much for organising the Birdshot Day yesterday; Mum and I both found it extremely interesting and informative.  After spending many years suffering with Birdshot on her own, my Mum was delighted to finally meet other Birdshotters and was particularly pleased to meet somebody who also comes from our small town!  What a small world! “

“Just to say a big thank you to you both, Narciss & all team members for an extremely professionally run event on Saturday, it is quite amazing to think that you both have only been running this for two years. I was initially a little sceptical as to whether attending the event was worthwhile (an engineering mind), however both my wife & myself came away with more information & in a funny way both enjoyed the event, so much was packed in to a short period of time. Again, a big thank you to all from us”

“I would like to say thank you and congratulations for Saturday.  My husband and I really enjoyed the day and we appreciate all the hard work we know has gone into arranging it.    We  both of course also found it very moving as it brought back old memories we thought we had buried, and Margaret’s poem gave me a real jolt back to 6/7 years ago when I was on a high dose of steroids and thought my life was finished.  “