SURVEY ON PERSONAL EXPERIENCES OF BEING TREATED WITH OZURDEX (dexamethasone) IMPLANT, SIROLIMUS INTRAVITREAL INJECTION OR HUMIRA (adalimumab) INJECTION
BUS has been asked to attend an appraisal meeting of NICE (National Institute for Health and Care Excellence) which will consider making three treatments available to the NHS for treating non-infectious uveitis. The meeting is expected to take place in 2016.
We would really appreciate your help in telling us your experiences if you have had any of the following treatments and we would particularly value hearing your feedback on what you consider to be the advantages and what you think are the disadvantages of these relatively new treatments in comparision to other treatments that you have had for your birdshot:
Ozurdex (dexamethasone) implant
Sirolimus intravitreal injection
Humira (adalimumab) injection
You will find the survey in a word document below.
BUS questionnaire about your experience with Ozurdex, Sirolimus or Humira
It does not matter whereabouts in the world you live: your comments will help BUS to get across to NICE the actual patient experience of having these treatments.
All your feedback and comments will be anonymised.
Thank you in advance for helping UK birdshotters!
Please send your responses by email: info@birdshot.org.uk
or by post to BUS, PO Box 64996, London SW20 2BT