Cookery Books

I attended a patient conference for younger people with macular disease today and came away with two great cook books that I want to tell you about.  I am sure anyone interested in self-help and healthy eating will enjoy them. They contain recipes which are good for eye health.

Fruit for Vision  and Vegetables for Vision – Nature’s Supplements for Eye Health  by Ian Grierson Professor of Ophthalmology University of Liverpool.  They contain lots of delicious looking recipes which are good for eye health.

The books will be of great interest to anyone wanting to eat healthily and gain pleasure from fruits and vegetables.  The recipes are intended to be a stimulus to eat more fruit and vegetables.

They retail for £10.00 each or £17.50 for the pair plus postage and packaging and are available from the Macular Disease Society see the link below.

My mouth is watering, looking at some of these recipes and thinking about eating them!


Steroid induced hump

Here is a question that a new member Vicky asked us to pose to see if anyone has any useful advice for her.  This is what she says:-

“Do any of you suffer from a hump?

Is there anything I can do to help with this?

To anyone else I guess this would sound ridiculous – but I’m hoping you know what I mean.

I find it quite distressing that my face has changed shape and that I now have a hump on the back of my neck, I understand that this is a side effect of the steroid usage but I was wondering if there were any members who have the same thing and have any tips for helping with this?”

Both Rea and I see chiropractors in our efforts to stay straight, improve our posture and reduce aches and pains that these drugs seem to inflict upon us, but we’d be interested to know if members know of other things that can help alleviate this particular problem.


Birdshot and Complementary Therapies

When faced with the news that you have been diagnosed with not only a rare eye disease but one where the prognosis is not good for the future, it is easy to see how you can feel as if your world has been turned upside down.   In some ways it can be looked upon as losing control of what is going on in it.

After being given details of the various medications (and their side effects) which may or may not work, it is almost certain that your emotions and thoughts are going to change – positive one minute and negative the next.  This in turn will have an affect on the physical body especially if one begins to feel helpless in this situation. Continue reading

Prescription Pre-payment

If you have been recently diagnosed with Birdshot you may not realise immediately that you should apply for a  pre-payment certificate for your prescriptions.  It will save you money in the long run.   The current cost is £104.00 for a 12-month PPC.  You don’t have to pay for it in one go,  I pay a monthly £8.70 for mine, by direct debit.

If prescription charges go up, you are covered for the rest of the year so you will not be affected immediately by price increases.

This link takes you to the NHS website to the page which has all the information about how to obtain the card.