Since the launch of the Birdshot Uveitis Society website just over a year ago, we are now in touch with over 250 people with Birdshot from across the world with nearly 100 of these people living in the UK and signed up and registered with BUS.
In addition we have people registered from as far away as away as USA, Canada, Honolulu, Fiji, Israel, New Zealand, Australia, South Africa as well as several European countries. 25 healthcare professionals are also signed up (NOTE this does not include all of the medical people involved with the Birdshot Day). These professionals with an interest in Birdshot range from consultants, researchers, registrars, doctors, nurses, medical students, pharmacists and other allied professionals.
We believe that BUS is making strides towards our objectives, having managed to identify a significant group of people who have the condition. We believe that we are in a position to be able to provide a good cohort of patients for researchers interested in doing research into this sight threatening disease.
Annie and Rea