Birdshot T Shirts, Hats, Badges and Bags for sale!

Because of popular demand, the Birdshot Uveitis Society is pleased to be offering the following unique Birdshot promotional items for sale.  Any profit made will be used to support the work of the Birdshot Uveitis Society.

T Shirt

Good quality cotton, available in small, medium, large, X large and XX large.  £10.00 plus postage and packing. Please click on the tab below to select the size you want to purchase, then add to cart. T shirt modelled by BUS member, Joanne at the Birdshot Day No 3.
Birdshot Day 3 Nov 15 052


Size



Black Peaked Cap

These are printed with Birdshot logo in reverse.  They are available in one size,  £5.00 plus postage and packing.  (Hat, modelled below by BUS member,  Robert.)

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Cotton Shopping Bag

One size bag measuring 14″ x 16″ with long handles – ideal to have handy for impulse shopping.  £3.00,  plus postage and packing. (Some may remember these bags as we used them at the 2nd Birdshot Day.)
Cotton Shopping bag




Small metal badges Size: 1.5″

£1.00 each, with no additional postage charge.
BUS Badge




 POSTAGE for UK and Europe

There is an additional charge for postage and packing depending on the value of items ordered.

£2.00 for  items up to £10.00 in value

£4.00 for items up to £25.00 in value

£6.00 for items up to £50.00 in value

Over £50.00 in value, please contact us for an accurate postage estimate.

For members in USA or Canada or Australia, it is necessary to add a postage premium to help cover costs.

Please select the number of items you have ordered in order to calculate the extra premium required for shipping goods.  If you are ordering more than three items, please contact BUS to obtain a quotation for an accurate postage cost.


Number of items ordered



Any queries, please contact Annie at info@birdshot.org.uk

Survey on potential Birdshot treatments – please help

SURVEY ON PERSONAL EXPERIENCES OF BEING TREATED WITH OZURDEX (dexamethasone) IMPLANT, SIROLIMUS INTRAVITREAL INJECTION OR HUMIRA (adalimumab) INJECTION

BUS has been asked to attend an appraisal meeting of NICE (National Institute for Health and Care Excellence) which will consider making three treatments available to the NHS for treating non-infectious uveitis. The meeting is expected to take place in 2016.

We would really appreciate your help in telling us your experiences if you have had any of the following treatments and we would particularly value hearing your feedback on what you consider to be the advantages and what you think are the disadvantages of these relatively new treatments in comparision to other treatments that you have had for your birdshot:

Ozurdex (dexamethasone) implant
Sirolimus intravitreal injection
Humira (adalimumab) injection

You will find the survey in a word document below.

BUS questionnaire about your experience with Ozurdex, Sirolimus or Humira

It does not matter whereabouts in the world you live: your comments will help BUS to get across to NICE the actual patient experience of having these treatments.

All your feedback and comments will be anonymised.

Thank you in advance for helping UK birdshotters!

Please send your responses by email: info@birdshot.org.uk

or by post to BUS, PO Box 64996, London SW20 2BT

New Birdshot posters

Below are links to two posters displayed at the recent Birdshot day.

ERG poster

The ERG poster shows a novel way of displaying ERG results from clinic appointment to clinic appointment, so at a glance you can tell if the situation has improved or if treatment is not working simply by looking at the direction of the graph.

100,000 Genomes Poster

The 100,000 Genomes poster  tells you more about a UK government project.    If we wanted we could apply to have Birdshot included in this analysis.

The project will sequence 100,000 genomes from around 70,000 people. Participants are NHS patients with a rare disease, plus their families, and patients with cancer.  The aim is to create a new genomic medicine service for the NHS – transforming the way people are cared for. Patients may be offered a diagnosis where there wasn’t one before. In time, there is the potential of new and more effective treatments. Genomics England, a company wholly owned and funded by the Department of Health, was set up to deliver this flagship project which will sequence 100,000 whole genomes from NHS patients by 2017.  Its four main aims are; to create an ethical and transparent programme based on consent; to bring benefit to patients and set up a genomic medicine service for the NHS; to enable new scientific discovery and medical insights; and to kick start the development of a UK genomics industry.   Do members think that this is something that they would like to be involved in?