Both Rea and I have problems with getting our Cellcept prescriptions from time to time due to shortages of the drug at the wholesalers.  Birdshot Uveitis Society has written about this difficulty before.  Now the Association of the British Pharmaceutical Industry has taken it up.    This is something we should all lobby our MPs about, because  most of them are totally unaware of the difficulties we  face obtaining our  monthly prescription.

Urgent action is needed to tackle the worsening problems UK patients face when trying to receive their medicine prescriptions, according to the UK’s Association of the British Pharmaceutical Industry (ABPI). Continue reading →

If you have registered to come to the Birdshot Day it would be really helpful if you could print off the days papers and bring them along to the day. We would also appreciate it if you could bring a pen along.  We’ll have a few pens for those who forget to bring them – but not enough for everybody!   And  we think you will need one! Continue reading →

Below is the detailed programme for the Birdshot day.  We are very excited that so many excellent expert speakers have agreed to participate at our first Birdshot Day.  This day has been organised by BUS,  Narciss Okhravi  and key people from Moorfields.  The fact that we  have been able to organise such a day is testament to the hard work and commitment of these people.

It is a great honour to be able to welcome Professor Phuc LeHoang and his colleague Dr Christine Fardeau to talk about  the latest birdshot research programme that they are carrying out in France.    We will also get the chance to hear about future developments and  will  be introducing the Pan European Birdshot Research Network to you all.    We are  most fortunate to have the help and support of  Professor Miles Stanford of Guys and St Thomas’s NHS Trust,  Mr Carlos Pavesio, Miss Narciss Okhravi and Mr Mark Westcott from Moorfields Eye Hospital, Professor Andrew Dick of Bristol Eye Infirmary and Professor Phil Murray of Birmingham University.

Book your places now.  The conference, including lunch, is free,  as we have managed to obtain sponsorship but we do require a £20 refundable registration deposit. This can paid on line here (debit and credit card & PayPal).   Please note that the payment will show that it is being made to the Uveitis Information Group.
You can also pay by cheque and information about how to do this is here.

If you are unemployed we will waive the deposit as we do not want people to be prevented from coming due to financial constraint.