I’m new to this forum and don’t have Birdshot, rather I have Still’s – aka juvenile rheumatoid arthritis + uveitis. But I am very relieved to find this forum, and will post more elsewhere in more detail if anyone is interested, as I am happy to share my experience with long-term use of oral prednisolone.
To make a very long story short, very recently I came off the pred (I was on 20mg give or take a few mg for the better part of 30 years and have noticed a dramatic decrease in vision.
The short-term solution that has been suggestion is to try a triamcinolone injection.
So I read the above posts with interest. I had an intraocular injection as a child many years ago, and it was so distressing and clearly painful that my mother smacked the doctor.
I am now marginally more prepared 🙂 thanks to your insight but have some concerns/thoughts which I thought I’d just throw out there.
1) I think I will take a little something to calm myself down ahead of time (I will ensure there are no contraindications)
2) I am concerned about the experiences of some posters re: pain/prolonged redness / soreness etc etc., as I was told it would be mildly uncomfortable but I would be “fine” by the next day. Hmmm.
3) Also concerned to hear about Liz’s experience with depression, as it is my understanding that direct injection has *none* of the side effects as oral meds – of which depression is definitely one.
4) I can particularly empathize with Liz’s comment about reading a book for pleasure – the very first sign I was losing my sight – and it really took me weeks to notice, because I just didn’t expect it, there were none of the normal signs of inflammation that I’ve had in the past – was that I just didn’t feel like reading and started making excuses.
I really hope the shot does the trick…
This was posted as a comment for the post about invitreal injections, but I thought I would repost it here so that everyone sees it in case it got buried and unread! Annie