Jonas Kuiper from Holland has kindly brought the following study to our attention and written the short summary below telling us more about what it found out. We are very grateful to Jonas for keeping us briefed about the Birdshot work that he is involved in Holland. Continue reading
A major survey is being undertaken across the UK and US into the experiences of people like us with Rare Diseases. The findings of the research will guide future research and education, so if you can spare 10 minutes to complete the survey, please click on the link below or copy and paste it – once on the site, you will see the link for the survey: Continue reading
NB Magazine (the eye health and sight loss magazine for professionals,) which is published by the RNIB recently wrote to us to see if one of our members would be happy to contribute to their column called ‘Patient Perspective’ . This features the experiences of people with sight loss – covering a different eye condition each time, and describing what it’s like living with the condition. Continue reading