What Is Your Experience of Having Birdshot?

A major survey is being undertaken across the UK and US into the experiences of people like us with Rare Diseases.  The findings of the research will guide future research and education, so if you can spare 10 minutes to complete the survey, please click on the link below or copy and paste it – once on the site, you will see the link for the survey: Continue reading

Sirolimus

Some of you may know that there have been trials on the drug, Sirolimus, which is given intravitreally or subconjunctivally (i.e. into the eye).

The idea behind this medication is that it should allow us to decrease our use of steroids which have such horrible side-effects, and it tends not to give so many other side effects, and it is not taken systemically (i.e. into our bodies). Continue reading