BUS is delighted to distribute the first Birdshot Research network newsletter which brings up-to-date news of where we have got with our exciting UK Birdshot database and biobank projects.
To find out more about the timescale please find your copy of Birdshot Research News 1 here.
Sue Southworth, our Birdshot research Nurse who is based at Birmingham was appointed in July. She has been extremely busy working on the ethics for this complex undertaking, and is working hard towards a timetable of launching the Birdshot database and biobank in April 2016.
Any patient who wants their eye clinic to be involved in this should feel free to tell their consultant of their wishes, and their consultant should in turn be in touch with Sue Southworth to tell her of their interest. Alternatively you can tell BUS of your interest by filling in the attached expression of interest form and sending it to BUS.
You will find Sue’s contact details are on the newsletter so print off a copy and take it to your next clinic appointment and give it to your consultant so that you can also be involved.
Currently we have 5 centres who have said they would like to be involved and unfortunately for the time being, because of logistics and ethics, this project only applies to people with Birdshot Uveitis in England and Wales.
We look forward to hearing from you!
for team Birdshot