MPs are debating Specialist Commission this Thursday 15th January. Please write to your MPs enlisting their support and ensuring that they attend this debate.
This is relevant to you because in the future Birdshot will come under specialised Commisioning and we need to make sure we get good services. At the moment, the government is trying to squeeze funding away from specialised commissioning and you may already be aware that they are planning not to fund anti TNFs (drugs like Humira and Infliximab) for people like us.
Below is a draft of a letter that you can alter as you wish to send to your MP.
Specialist commissioning letter draft
and a briefing paper which you might also like to send.
SHCA Briefing Materials for Westminster Hall debate on national commissioning of NHS specialised services – Jan 2015 specialist commissioning letter
Joint Fight for Sight/Birdshot Uveitis Society News Release
This week, the Birdshot Uveitis Society (BUS) and Fight for Sight released a joint news release and already we have received some positive Press coverage, both online and in the print version of Optician Today. Continue reading
This is an unmissable event for people who are blind or partially-sighted, for professionals supporting and advising VIPs and for all businesses and other organisations wishing better to meet the needs of their vision impaired customers. Continue reading
BUS, through the joint Fight for Sight/BUS Small Grant Awards 2014, is about to support three interesting pieces of research which have just undergone the grant approval process. As you read on, you will see how some of the proposed research builds on earlier research started through the same grants scheme. Continue reading
We pleased to announce that we recently received a donation of £1,080 from the market research company who were running a uveitis survey in the UK and France. Continue reading
The next meeting of the PINGU (Patient involvement group for uveitis) is planned for 30th September 2014 at 6:30 pm in the CRF on ward D46.
This is a local support group for people with all types of uveitis that the Birmingham and Midland Eye Centre run. If you want to obtain more information about uveitis and its treatment, come along and meet others with this type of eye problem as well as some of the eye clinic staff.
Please do let Sue Southworth know if you are planning to attend.
Sue Southworth, Research Nurse/ Co-ordinator
Birmingham and Midland Eye Centre
Tel +44(0)121 507 6844
We’d like to thank BUS member Nick Bucknell and his fellow saxophonists from his band “Sax in the Styx” for generously donating their fee from a recent gig. To the left a picture of the four of them performing in the summer sunshine. Many thanks to all for the much appreciated generous support!
We are delighted to announce that we have just heard from Fight for Sight that the call for the Joint Small Grant Awards Scheme is now open.
The link to the Small Grant Awards Schemes webpage is http://fightforsight.org.uk/funding-types/articles/small-grant-awards-schemes
This year we have three small grants of £15,000 available for Birdshot Research. The closing date for applications is 5pm on Wednesday 27 August 2014.
We’ve just received the following from Chris Hames, one of our members which we would like to promote. He’d really appreciate your support!
Like a fool & something to do on a Sunday I have elected to cycle the London Surrey 100 cycle ride on the 10th August 2014. I thought for my effort it would be a good idea to raise some money for Moorfields Eye Charity & aim to raise at least £550. I do do some cycling when it is not windy & the sun is shining, but to date (two weeks ago) my maximum has been 51 miles & I did spectate on the Tour De France at the weekend just to see “how easy” it is (still not convinced). Any way, if you can post my link on the website https://www.justgiving.com/chris-Hames1/, I would appreciate as much support as I can to gee me up Box Hill & Leith Hill, finishing on the Mall hopefully will be the easy bit.