Urgent your help is needed – Specialist Commissioning Debate

MPs are debating Specialist Commission this Thursday 15th January.  Please write to your MPs enlisting their support and ensuring that they attend this debate.

This is relevant to you because in the future Birdshot will come under specialised Commisioning  and we need to make sure we get good services. At the moment, the government is trying to squeeze funding away from specialised commissioning and you may already be aware that they are planning not to fund anti TNFs  (drugs like Humira and Infliximab) for people like us.

Below is a draft of a letter that you can alter as you wish to send to your MP.

Specialist commissioning letter draft

and a briefing paper which you might also like to send.

SHCA Briefing Materials for Westminster Hall debate on national commissioning of NHS specialised services – Jan 2015 specialist commissioning letter

Next PINGU meeting in Birmingham

The next meeting of the PINGU (Patient involvement group for uveitis) is planned for 30th September 2014 at 6:30 pm in the CRF on ward D46.

This is a local support group for people with all types of uveitis that the Birmingham and Midland Eye Centre run.  If you want to obtain more information about uveitis and its treatment, come along and meet others with this type of eye problem as well as some of the eye clinic staff.

Please do let Sue Southworth know if you are planning to attend.

 

Sue Southworth, Research Nurse/ Co-ordinator

Birmingham and Midland Eye Centre

Tel +44(0)121 507 6844

 

3 small grant awards for research into Birdshot

We are delighted to announce that we have just heard from Fight for Sight that the call for the Joint Small Grant Awards Scheme is now open.

The link to the Small Grant Awards Schemes webpage is http://fightforsight.org.uk/funding-types/articles/small-grant-awards-schemes

This year we have  three small grants of £15,000 available for Birdshot Research.  The closing date for applications is 5pm on Wednesday 27 August 2014.

 

 

Help Chris raise money for Moorfields Eye charity

We’ve just received the following from Chris Hames, one of our members which we would like to promote.  He’d really appreciate your support!

Like a fool & something to do on a Sunday I have elected to cycle the London Surrey 100 cycle ride on the 10th August 2014. I thought for my effort it would be a good idea to raise some money for Moorfields Eye Charity & aim to raise at least £550. I do do some cycling when it is not windy & the sun is shining, but to date (two weeks ago) my maximum has been 51 miles & I did spectate on the Tour De France at the weekend just to see “how easy” it is (still not convinced). Any way, if you can post my link on the website https://www.justgiving.com/chris-Hames1/, I would appreciate as much support as I can to gee me up Box Hill & Leith Hill, finishing on the Mall hopefully will be the easy bit.

Many thanks,

Chris Hames.