Rea posted about this a few weeks ago. Along with Stephen Foster, Dagmar Cole from Birdshot Lefora, Rea has been actively involved in helping to shape the agenda for this exciting meeting for doctors and patients on 28th September 2013. Continue reading
It is with regret that we have to announce that Rea has decided to step down as a Director and Trustee of the Birdshot Uveitis Society. She has worked tirelessly over the last few years helping to set the charity up and has undertaken ground breaking work to establish the Society’s position both in the UK, Europe and the USA. Continue reading
Jonas Kuiper from Holland has kindly brought the following study to our attention and written the short summary below telling us more about what it found out. We are very grateful to Jonas for keeping us briefed about the Birdshot work that he is involved in Holland. Continue reading
A major survey is being undertaken across the UK and US into the experiences of people like us with Rare Diseases. The findings of the research will guide future research and education, so if you can spare 10 minutes to complete the survey, please click on the link below or copy and paste it – once on the site, you will see the link for the survey: Continue reading
NB Magazine (the eye health and sight loss magazine for professionals,) which is published by the RNIB recently wrote to us to see if one of our members would be happy to contribute to their column called ‘Patient Perspective’ . This features the experiences of people with sight loss – covering a different eye condition each time, and describing what it’s like living with the condition. Continue reading
A paper entitled “Reappraisal of birdshot retinochoroiditis (BRC): a global approach.” has just been published by M Papdia and C P Herbort. Continue reading
Some of you may know that there have been trials on the drug, Sirolimus, which is given intravitreally or subconjunctivally (i.e. into the eye).
The idea behind this medication is that it should allow us to decrease our use of steroids which have such horrible side-effects, and it tends not to give so many other side effects, and it is not taken systemically (i.e. into our bodies). Continue reading
There has been an overwhelming number of papers being produced on helminthic therapy (worms) recently. This is exciting, as it means that it is a therapy that is being taken seriously, and therefore may well get to trial quite soon. Continue reading
I have already posted about the moves being made in gene therapy. Andrew Dick (who chairs the Birdshot Research Network) and colleagues have published a paper on gene therapy for non infectious uveitis, including severe forms of posterior uveitis such as Birdshot. Continue reading
Stephen Foster and associates have published a paper on Treatment of Birdshot with Infliximab. You may be aware that Stephen Foster is hosting the 2013 Birdshot Day on 28 September 2013, in Boston, United States. He has a profound interest in Birdshot and was instrumental in helping us set up BUS. Continue reading