Last year many of you very kindly completed the Sight Loss and Vision Priority Setting Partnership survey and following this we have now received a short list of a number of “uncertainties” to consider. We want to know which 10 “uncertainties” are most important to you. Please see below, ( or – Inflammatory FORM A_James Lind Alliance Sight Loss and Vision Priority Setting Partnership). This is your chance to influence the direction taken by eye researchers on our behalf. Continue reading
Author Archives: Annie
Fundraising initiatives – every little bit helps!
Quote
Hampton Village Christmas Fair
Chinos, a local Hampton cafe as part of the Hampton Village Christmas Fair sold soup and chestnuts to raise funds for BUS, with 75p from each sale going to the Birdshot Uveitis Society. They decided to support BUS in this way because our treasurer Peter Edney had told the cafe owner about the troubles his wife Janie has been having with her vision and the work of the Birdshot Uveitis Society. Continue reading
Give as you Earn
Payroll giving is a great way to support a charity, especially as employers will sometimes also make a contribution to your chosen cause. Administratively it is very cost effective for the charity and it is simple to do. Continue reading
Phillips 66 present BUS with cheque for £3,000!
Last Friday, BUS Trustee and Director John Hall made a 400 mile round trip to attend a cheque presentation ceremony at Humber Oil Refinery. Phillips66 workforce had managed to achieve 80 injury free days and as part of their Safety Recognition Scheme are able to offer a Phillips 66 Employee and Contractor Workgroup the opportunity to nominate a particular charity to receive a donation of £3,000. Birdshot Uveitis Society was nominated by Birdshot member Chris Hames, whose Phillips 66 Project and Construction workgroup supported the donation to BUS. The generous donation is to go towards future Birdshot research. Continue reading
Zinc and its affect on the immune system
We came across this article on the BBC News website about the affect of Zinc on controlling the immune system and wondered if it has any relevance for Birdshotters? Continue reading
Raising money for Birdshot…with Birdshot!!
We are very excited to announce that we are organising our very first Charity Clay Pigeon Shoot! This will raise vital funds, enabling us to continue the development of the Birdshot Uveitis Society through investment in research and ultimately preventing avoidable loss of sight. Continue reading
Second International Birdshot Symposium in Boston USA
Rea posted about this a few weeks ago. Along with Stephen Foster, Dagmar Cole from Birdshot Lefora, Rea has been actively involved in helping to shape the agenda for this exciting meeting for doctors and patients on 28th September 2013. Continue reading
Rea Mattocks announcement
It is with regret that we have to announce that Rea has decided to step down as a Director and Trustee of the Birdshot Uveitis Society. She has worked tirelessly over the last few years helping to set the charity up and has undertaken ground breaking work to establish the Society’s position both in the UK, Europe and the USA. Continue reading
Dutch Vision related Quality of Life study
Jonas Kuiper from Holland has kindly brought the following study to our attention and written the short summary below telling us more about what it found out. We are very grateful to Jonas for keeping us briefed about the Birdshot work that he is involved in Holland. Continue reading
Steve’s Birdshot Story
NB Magazine (the eye health and sight loss magazine for professionals,) which is published by the RNIB recently wrote to us to see if one of our members would be happy to contribute to their column called ‘Patient Perspective’ . This features the experiences of people with sight loss – covering a different eye condition each time, and describing what it’s like living with the condition. Continue reading