Fundraising initiatives – every little bit helps!

Quote

Hampton Village Christmas Fair

Chinos, a local Hampton cafe as part of the Hampton Village Christmas Fair sold soup and chestnuts to raise funds for BUS, with 75p from each sale going to the Birdshot Uveitis Society.  They decided to support BUS in this way because our treasurer Peter Edney had told the cafe owner about the troubles his wife Janie has been having with her vision and the work of the Birdshot Uveitis Society. Continue reading

Phillips 66 present BUS with cheque for £3,000!

Cheque presentation from Phillips66

Left to right: Lee Cockbum (Project Management Superintendent), Lynn Hawthorne (HSE Manager), John Hall and Chris Hames

Last Friday, BUS Trustee and Director John Hall made a 400 mile round trip to attend a cheque presentation ceremony at Humber Oil Refinery.  Phillips66 workforce had managed to achieve 80 injury free days and as part of their Safety Recognition Scheme are able to offer a Phillips 66 Employee and Contractor Workgroup the opportunity to  nominate a particular charity to receive a donation of £3,000.   Birdshot Uveitis Society was nominated by Birdshot member Chris Hames, whose Phillips 66 Project and Construction workgroup supported the donation to  BUS. The generous donation is to go towards future Birdshot research. Continue reading

Rea Mattocks announcement

It is with regret that we have to announce that Rea has decided to step down as a Director and Trustee of the Birdshot Uveitis Society. She has worked tirelessly over the last few years helping to set the charity up and has undertaken ground breaking work to establish the Society’s position both in the UK, Europe and the USA. Continue reading

What Is Your Experience of Having Birdshot?

A major survey is being undertaken across the UK and US into the experiences of people like us with Rare Diseases.  The findings of the research will guide future research and education, so if you can spare 10 minutes to complete the survey, please click on the link below or copy and paste it – once on the site, you will see the link for the survey: Continue reading

Steve’s Birdshot Story

NB Magazine (the eye health and sight loss magazine for professionals,) which is published by the RNIB recently wrote to us to see if one of our members would be happy to contribute to their column called ‘Patient Perspective’ .  This features the experiences of people with sight loss – covering a different eye condition each time, and describing what it’s like living with the condition. Continue reading