Mchael Porath Petersen and Nic Ladha, friends of Rea Mattocks decided to raise money for Birdshot Research by running the Richmond Half Marathon in support of Birdshot Uveitis Society. So far they have raised over over £1000 for Birdshot research and the money is still coming in. Thank you so much. Continue reading
BUS has a facebook friend who is a young sufferer of Birdshot Uveitis who would like to be in touch with others in a similar age bracket. If you would like to be in touch by email or via facebook please do let us know and we will help you connect.
Recently a volunteer from RNIB wrote to BUS telling us about a services that they provide for blind and partially-sighted people. It is called their Technology Support Service and they are asking us to promote it to our members.
The Technology Support Service aims to help blind and partially-sighted people to remain or become independent. So if your vision has been badly affected by your Birdshot at the moment, or you know someone else who could use this help, you might like to get in touch with RNIB to find out more. Note you do not have to be registered as partially sighted, but you do need to be based in the UK!
RNIB specialist volunteers – known collectively as the Technology Support Squad – are available to help with all kinds of technology-related tasks such as installing DVD players, connecting PC’s/Laptops, helping individuals access audio libraries, using DAISY talking book player and many other technical type problems which you might find difficult on your own.
They also have a network of volunteers who are available to help people by visiting them in their homes.
If you think you know of someone who could benefit from the use of this service, please ask them to get in touch with the Technology Support Squad on; 0303 123 9999, email; email@example.com or find us online; rnib.org.uk/techsupport.
If you do decide to try it out, please do let us know how you get on. It is always interesting to get feedback about services like this.
We have a member based in Capetown who would like to be in touch with others in South Africa who have Birdshot so that you can share your local knowledge and experience of treatment etc.
If you would like to be put in touch with this Birdshotter, please email us let us and we will be pleased to put you in touch.
Annie for the Birdshot Team
We are delighted to announce the publication of a paper about the 1st Birdshot Day which, as you will see from the list of authors, involved many of us. It was published by the British Journal of Ophthalmology (on-line), on the 7th March 2013 .
BUS wants to draw your attention to a link to an article about a research paper recently published and written by researchers who are coincidentally members of our National Birdshot Research Network. The paper explains why extramacular scanning may be a helpful tool in diagnosing, and monitoring cases of Birdshot. Continue reading
We have recently been asked for volunteer patients with Birdshot for third year Optometry students to examine. This is both for teaching, training purposes and also for their exams. This will take place in London close to Moorfields Eye Hospital at the Fight for Sight Optometry Clinic. Continue reading
Last year many of you very kindly completed the Sight Loss and Vision Priority Setting Partnership survey and following this we have now received a short list of a number of “uncertainties” to consider. We want to know which 10 “uncertainties” are most important to you. Please see below, ( or – Inflammatory FORM A_James Lind Alliance Sight Loss and Vision Priority Setting Partnership). This is your chance to influence the direction taken by eye researchers on our behalf. Continue reading
Hampton Village Christmas Fair
Chinos, a local Hampton cafe as part of the Hampton Village Christmas Fair sold soup and chestnuts to raise funds for BUS, with 75p from each sale going to the Birdshot Uveitis Society. They decided to support BUS in this way because our treasurer Peter Edney had told the cafe owner about the troubles his wife Janie has been having with her vision and the work of the Birdshot Uveitis Society. Continue reading
Payroll giving is a great way to support a charity, especially as employers will sometimes also make a contribution to your chosen cause. Administratively it is very cost effective for the charity and it is simple to do. Continue reading