Are you in your 20s suffering from Birdshot?

BUS has a facebook friend who is a young sufferer of Birdshot Uveitis who would like to be in touch with others in a similar age bracket. If you would like to be in touch by email or via facebook please do let us know and we will help you connect.  

Annie
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RNIB Technology Support Services

Recently a volunteer from RNIB wrote to BUS telling us about a services that they provide for blind and partially-sighted people.  It is called their Technology Support Service and they are asking us to promote it to our members.

The Technology Support Service aims to help blind and partially-sighted people to remain or become independent.  So if your vision has been badly affected by your Birdshot at the moment, or you know someone else who could use this help, you might like to get in touch with RNIB to find out more.  Note you do not have to be registered as partially sighted, but you do need to be based in the UK!

RNIB specialist volunteers – known collectively as the Technology Support Squad – are available to help with all kinds of technology-related tasks such as installing DVD players, connecting PC’s/Laptops, helping individuals access audio libraries, using  DAISY talking book player and many other technical type problems which you might find difficult on your own.

They also have a network of volunteers who are available to help people by visiting them in their homes.

If you think you know of someone who could benefit from the use of this service, please ask them to get in touch with the Technology Support Squad on; 0303 123 9999, email; helpline@rnib.org.uk or find us online; rnib.org.uk/techsupport.

If you do decide to try it out, please do let us know how you get on.  It is always interesting to get feedback about services like this.

Annie

 

Calling Birdshotters in South Africa

We have a member based in Capetown who  would like to be in touch with others in South Africa who have Birdshot so that you can share your local knowledge and  experience of treatment etc.

If you would like to be put in touch with this Birdshotter, please email us let us  and we will be pleased to put you in touch.

Thank you

Annie for the Birdshot Team

 

What are your Birdshot priorities?

Last year many of you very kindly completed the Sight Loss and Vision Priority Setting Partnership survey and following this we have now received a short list of a number of “uncertainties” to consider.   We want to know which 10 “uncertainties”  are most important to you.  Please see below, ( or – Inflammatory FORM A_James Lind Alliance Sight Loss and Vision Priority Setting Partnership).  This is your chance to influence the direction taken by eye researchers on our behalf. Continue reading

Fundraising initiatives – every little bit helps!

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Hampton Village Christmas Fair

Chinos, a local Hampton cafe as part of the Hampton Village Christmas Fair sold soup and chestnuts to raise funds for BUS, with 75p from each sale going to the Birdshot Uveitis Society.  They decided to support BUS in this way because our treasurer Peter Edney had told the cafe owner about the troubles his wife Janie has been having with her vision and the work of the Birdshot Uveitis Society. Continue reading