Rea posted about this a few weeks ago. Along with Stephen Foster, Dagmar Cole from Birdshot Lefora, Rea has been actively involved in helping to shape the agenda for this exciting meeting for doctors and patients on 28th September 2013. Continue reading
It is with regret that we have to announce that Rea has decided to step down as a Director and Trustee of the Birdshot Uveitis Society. She has worked tirelessly over the last few years helping to set the charity up and has undertaken ground breaking work to establish the Society’s position both in the UK, Europe and the USA. Continue reading
Jonas Kuiper from Holland has kindly brought the following study to our attention and written the short summary below telling us more about what it found out. We are very grateful to Jonas for keeping us briefed about the Birdshot work that he is involved in Holland. Continue reading
NB Magazine (the eye health and sight loss magazine for professionals,) which is published by the RNIB recently wrote to us to see if one of our members would be happy to contribute to their column called ‘Patient Perspective’ . This features the experiences of people with sight loss – covering a different eye condition each time, and describing what it’s like living with the condition. Continue reading
A paper entitled “Reappraisal of birdshot retinochoroiditis (BRC): a global approach.” has just been published by M Papdia and C P Herbort. Continue reading
If you want to help Birdshot Uveitis Society while you do your online shopping don’t forget to sign in to your Easy Fundraising account before you start your shopping. Continue reading
The Birdshot Uveitis Society’s unique Christmas card, designed for us by Birdshot Uveitis Society member David Bethell are now available for people to purchase. All profit from the sale of these cards will support the work of the Birdshot Uveitis Society.
Cards measure 150mm x 150mm and are printed on a quality card. They come in packs of 10 with white envelopes and are priced at £3.95 per pack. The greeting inside the card is “Merry Christmas and a Happy New Year”.
Please simply click add to cart button below, type in the number of packs of cards you wish to purchase, click update and follow the instructions using either a credit card or Pay Pal to pay for your order.
If your order is for more than 6 packs please order by emailing info@birdshot.org.uk and we will send you a Pay Pal invoice for you to pay which will include the higher rate of postage and packing of £4.95. Also if you wish to have cards sent to you overseas please email us with your request and we will invoice you with the correct amount to pay via Pay Pal and will dispatch them to you once we have received payment.
You may also order via the post by sending your order and cheque made payable to Birdshot Uveitis Society to BUS Box 64996. London SW20 2BL.
| Country | Rates | |
| Up to £25 | £25.01 & over | |
| UK | £3.25 | £4.95 |
| Eire & Europe | 40% of purchase price, minimum £4 | |
| Rest of World | 40% of purchase price, minimum £4 | |
If you want us to send cards overseas, please make sure you allow enough time for delivery.
Thank you!
Last week we sent out a very short follow-up quality of life questionnaire to participants of our 1st questionnaire who kindly gave us their email address to allow us to follow-up.
We’d really like to see how things may have changed for you since undertaking the 1st survey. We do hope that you will all complete this as soon as possible as it will provide helpful data to supplement the original data .
If you have not received the email with the link to the survey and you think you should have, please get in touch with me at annie@birdshot.org.uk so that I can resend the link to you.
Many thanks to all who have already completed it. We do appreciate your continued help with this useful research.
Annie
A group of Birdshotters and their friends took part in Friday night’s Carrots Night walk raising money towards future Birdshot research. The walk was organised by the charity Fight for Sight.
BUS are pleased to announce that we will have raised at least £7,000, and probably more, thanks to all the generous support we have received from friends, family and supporters. This is fantastic news for Birdshotters. It means that we have made a good start towards helping to get some funding for future research into Birdshot in partnership with the much larger charity Fight for Sight. Thanks so much to all our supporters and of course to all our walkers!!
It’s not too late to donate! http://www.justgiving.com/teams/Birdshot-Biobank
Lorraine leading the way for the Birdshot team of walkers
More photos of the some of the team and some of the sights from the walk are displayed in the Photo albums on the Birdshot facebook page.
Below a picture of Professor Peng Khaw, Director of Research and Development, Moorfields Eye Hospital and Director of the NIHR Specialist NIHR Moorfields Biomedical Research Centre, with Birdshot Uveitis Society founder members Rea, Adrian and Annie before the walk began.
Left to right – Adrian, Annie, Rea and Professor Peng Khaw
Adrian checking on the map that we are on the right route! left to right, Mikael, Adrian, Lorraine and Monica
Some of the Birdshot walkers left to right: Rea, Adrian Lorraine, Monica, Sue, Sue, Avril, Chrissy, Lesley, Annie and Claudia
Six individuals from the online retail and digital industry, known as DIGITAL DOGOODERS are taking part in a tandem sky dive in aid of BUS. They are helping us to create awareness and publicize the work of BUS and also helping us sell tickets for the Winter Benefit on the 3rd November to their colleagues and friends.
The fool hardy folks of Digital Dogooders are – Leon Bailey Green, Jonathan Hall, Gabrielle Hase, Helen Colclough, James Gurd and Fergal O’Mullane.
If you would like to support their jump you can make a donation to BUS through their Bmycharity page http://www.bmycharity.com/birdshotwinterbenefit
This a great intiative and we are very grateful to this intrepid team for supporting us and helping us in this way. We hope it will be the first of many adventures!
Thank you so much to the “Digital Dogooders” for your support!
