If you haven’t done so already, and are taking immunosuppressants, please go and get your flu vaccine from your doctors! A Pneumonia vaccine (Pneumococcal vaccine) is also recommended by some specialists.
There is no evidence to show how easy it is to catch flu from someone who has had the live flu vaccine administered by the nose and the risks are probably quite small for birdshotters, but the best advice we can give is “Get your flu jab now!”
PS I’ve just booked my appointment!
Annie
We are delighted to tell you that we recently received a cheque for £356.00. This was raised through the sale of raffle tickets for this beautiful handmade quilt. (below).
It was made by BUS member who got in touch with us a few months ago to say that her quilting group had decided to nominate BUS as the beneficiaries of a raffle being held at the Royston Arts Festival at the end of September. Below are a couple of picture of some of the other quilts which were also on display.
Quilting exhibition raises £356.00 for BUS by raffling a handmade quilt
Thank you so much for your support. We are delighted to receive the raffle proceeds and also learn that a lot of interest was generated about Birdshot Uveitis as a result of the raffle.
Once again the Birdshot Uveitis Society’s unique Christmas card has been designed for us by Birdshot Uveitis Society member David Bethell. From next week (15th October) they will be available for people to purchase. All profit from the sale of these cards will support the work of the Birdshot Uveitis Society.
Cards measure 140mm x 140mm and are printed on a quality card. They come in packs of 10 with white envelopes and are priced at £3.95 per pack. The greeting inside the card is “Merry Christmas and a Happy New Year”.
Please simply click add to cart button below, type in the number of packs of cards you wish to purchase, click update and follow the instructions using either a credit card or Pay Pal to pay for your order.
If you wish to have cards sent to you overseas please email us with your request and we will invoice you with the correct amount to pay via Pay Pal and will dispatch them to you once we have received payment.
You may also order via the post by sending your order and cheque made payable to Birdshot Uveitis Society to BUS Box 64996. London SW20 2BL.
| Country | No of packs Rate | |
| UK | 1 – 5 packs | £3.25 |
| UK | 6 – 10 packs | £6.00 |
| More than 10 packs | Please email us with your order so we can calculate your postage. | |
| Rest of World | 40% of purchase price, minimum £4 | |
If you want us to send cards overseas, please make sure you allow enough time for delivery.
Thank you!
We have been asked to advertise this exhibition and the details are below. Also attached here is a pdf poster for the event. Please also see below for details.
Annie for Team Birdshot
Queen Alexandra College presents Sight Village London 2013
at Kensington Town Hall London W8 7NX on 5th November 10.00am until 4.30pm and 6th November 10.00am until 4.00pm
Admission is free
Unmissable for employers, professionals, end users, public sector.
QAC Sight Village events are the UK’s leading exhibitions of technology, equipment and support services for people who are blind or partially sighted experiencing age related sight problems.
QAC Sight Village is organised by Queen Alexandra College, Birmingham, a National College for People with Visual Impairment and/or other Disabilities.
It’s not too late to contribute to the teams efforts! You can do so by visiting http://www.bmycharity.com/birdshotcarrotsnightwalk.
Thank you to all the walkers who took part in the Carrots Night Walk on Friday 20th September and helped to raise over £7000 towards a future Small Grant award for Birdshot Research. This is a stunning result from a small group of Birdshotters, their friends and family.
We had walkers travelling from as far as Leeds to the London walk and one walker who lives in Shrewsbury who walked in Birmingham. It was Lesley Fisher and Claudia Wilson-Barrett’s 2nd Carrot walk for BUS.
Many of you will also know eye clinic sister, Claudia Wilson-Barrett from your visits to the Moorfield’s and Croydon University Hospital eye clinics. This year she did the 6 mile walk accompanied by her two small daughters.
Many thanks to Lesley who bravely took on the roll of team co-ordinator, making sure that people met up on the night and providing some of the photographs for the website!
Before the walk above, and below, after it was all over. We can’t believe how fresh you all look!
We cant thank you enough!
Triumphant family team from Leeds with Lesley Fisher
Birdshotters and those interested in the treatment of Birdshot Uveitis may be interested in visiting the Scottish Uveitis Network’s (SUN) website http://www.sun.scot.nhs.uk. This is a relatively new site with clear well written patient information available about a range of immunosuppressive therapies.
You will find their patient information leaflets here. SUN includes information about the following:- Adalimumab, Azathioprine, Ciclosporin, Infliximab, Methotrexate Tacrolimus Mycophenolate
Sun Treatment Guidelines (108 pages) is also worth looking at. It is intended for clinicians and doctors to help ensure consistency of treatment is offered to all uveitis patients in Scotland. The pathways includes information about other less commonly used drugs and may be particularly of interest if your Birdshot is stubborn or you don’t tolerate the drugs you are on and want to educate yourself about possible alternatives so that you are prepared for what might be suggested to you.
All the information on this website has gone through a comprehensive committee/review process involving both patients and clinicians from across Scotland and is the result of a considerable amount of hard work by the people involved.
We think that the website is easy to navigate and extremely well laid out.
Annie
for Team Birdshot
If you can’t take part in the Carrots Nightwalk, but you want to donate to help fund Birdshot research and to support our walkers, you can do so by following the link to the Carrot Nightwalk Birdshot team page. http://www.bmycharity.com/birdshotcarrotsnightwalk
Thank you!
Birdshot Team
Recently BUS member Maureen, got in touch with us to say that her quilting group had decided to nominate BUS as the beneficiaries of a raffle being held at the Royston, Arts Festival on the 28th and 29th September 2013.
Maureen is a keen quilter and made the beautiful quilt being raffled, herself. We are delighted to advertise the event in case any of our members would like to drop in or even join the quilting group.
Here is a bit about Priory Quilters which Maureen belongs to:
Priory Quilters started twenty years ago – we are celebrating our birthday with a garden party in August. There have been times when membership has been about 100 but now we have between 20 and 30 members. We meet once a month in the evening and have speakers, do it ourselves evenings and help desks. Also once a month some of us meet in the afternoon. We hold workshops and UFO (unfinished objects) days on the occasional Saturday and usually have one outing a year. Our quilt show is held in association with the Royston Arts Festival every two years. This year the show is on September 28 and 29 in the upstairs room at the Town Hall, Royston Hertfordshire SG8 7DA, from 10 to 4.30. There is disabled access and entry is free. New members are always welcome.
Thank you so much for taking this initiative. We wish you the best of luck and look forward to hearing how it all goes and if any member wants to pop into the exhibition, we know Maureen will be delighted to see you.
Many, many thanks to BUS member Hamamelis/Opodeldoc for using the opportunity of her 70th birthday to fund-raise for BUS. She kindly organised three celebration parties for neighbours, family, friends and ex-work colleagues, and asked for donations for Birdshot Research in lieu of the presents that one normally receives. The plan was a great success and everyone had a jolly good time. As a result of the generosity of all the party-goers, BUS has received donations worth almost £850. We’d like to thank Hamamelis/Opodeldoc for doing this, and we are delighted to have benefited from her magnificent efforts. Who would have thought that you just had to have a birthday to raise this kind of money?
Thank you so much – we suspect that organising three parties was quite a lot of work, but well worth the effort, and of course it all helps to educate people about our eye condition.
Thank you so much
Team Birdshot
BUS recently received the following request from Genetic Alliance for a rare disease awareness campaign that they are running. We are posting this letter in case any of our UK based members would like to tell their story to publicise Birdshot Uveitis and help raise the profile. Continue reading